(Don’t worry, there aren’t that many songs with breathing associations left!)
Today I took myself back to the hospital, again on the train, again brought a coffee and a book and settled in for a long wait. Longer than it should have been as I misread the letter, and arrived for a 10am appointment that was actually booked in for 11am. Never mind, I nearly finished Cloud Atlas; as an aside, I’d like to get hold of the film to see how they managed to film it.
I spent over an hour with the consultant, she was amazing. Another incredible lady like the cardiologist, she knew her stuff. Short answer, we still don’t know what’s going on. I maybe on the cusp of something, which as it (whatever it is) is early, doesn’t show on tests yet. Or it may still be pulmonary hypertension, high blood pressure inside my heart, but only triggered on exertion. Or it may be an auto-immune issue. Lupus has been mentioned a few times too.
I had more blood tests done, I’m booked back in for an exercise test and a repeat of some of the respiratory tests to see if there is any change. And I may have to have another visit to theatre to get my heart looked at again, as although I told her I’d had a right heart check, there are no notes on it in the system. Whoops.
But, some of my symptoms are easing. I can now walk a bit quicker, than I have been. Walking and talking don’t get me so out of puff too. I also did the vacuuming yesterday and I wasn’t blowing out my arse (technical term) at the end of it. However the fatigue is not letting up. I’m constantly tired, constantly pushing through just to get to the end of the day. If I sit down and I’m not doing something, I will nod off. I’m also cold, yes it is winter, and hoofing it down with rain as I type (I realised the cat was still outside. Whizzed down to let him in – to say he was not amused would be an understatement!), but I go to bed with PJs, socks, under a duvet and a blanket and most nights with a hot water bottle. But I also sweat a lot too, at the slightest exertion, e.g. cleaning my teeth, getting dressed, I have to sit down between tasks in the morning otherwise I’m trying to put make-up on ‘glowing’ skin.
Hubs said that I need to appear on House, then we’d get it figured out in an hour.
I’ve also been given the all-clear to exercise, to do what I can. Not sure what that’ll be, but I’ll head out for a walk tomorrow lunchtime. It’s a start.